Harmony's in Boston now....

Since Harmony's Hope has been all over the news and the papers, thanks to Jonathan....I thought that I should give everyone an update on me. I moved up to Boston on July 29th and had my first proton beam treatment on July 30th. Thanks to the extraordinary generosity of family and friends, I was able to get my family and I, a furnished apartment a block from the hospital. I have treatment 5 days a week and have been travelling back and forth on the weekends. Everyone in the treatment center is so amazingly kind and caring. They have been so good to the kids, with candy and games and Music therapy on Wednesday's. The radiation has not affected my energy level yet, so we are still able to adventure around the city every day. The total number of treatments that I will need is 39 and today was number 13....so there is still much more to endure. My wonderful husband Chris, who was home last week, decided that he wanted to be here to take care of his family...so that has been FABULOUS, to not be in this alone and to have my whole family here with me, gives me tremendous strength to push through this final phase of my battle with this illness.

I really appreciate the generous donations that people have made through this raffle: Mark & Michelle Vernacotola, Pamela Apt, Lisa Morrow, Michelle Archibald, Richard Sippel, Kiki France-Perry (who has also been sending toys to my kids!), Catherine Butry, Donna Fratangelo, Marilyn Congdon(at such a hard time for you, thinking and helping others is very touching to me!!!), Elizabeth Herbert, Susan Vanderwall, Megan Angelo-Hanrahan (have not seen you in years), William Williams, Pamela Kasperkoski, Kelli Foster (whose mom is also battling breast cancer), Debrah Belbas, Duane Gosley, Amy Gregory, Jason Turk, Kevin Pietrzak (who has helped me in so many ways, love you), and many others.....

At this point they can see no regrowth of my chordoma, and are giving me the highest dosage of Proton Beam radiation that is possible...so I am really hoping that this will be the end of this madness for me, and when I return to Rochester at the end of September, I hope to be permanently cancer free and not look back---

I REALLY appreciate all the positive vibes and the caring that is being sent my way!!!!!!!